Sunday, September 22, 2013

Finally, a diagnosis... sort of.

I don't share much of how I feel, physically, on the blog.  The main reason I've not posted regularly in quite a while is because, frankly, I feel like crap most days and really, no one wants to hear me complain all the time.  Training has been non-existent and when I feel I can do a little something, it takes me days to recover. 

I've been seeing doctors since late fall 2012 and just finally am starting to get somewhere.  In July, I was diagnosed with Eosinophilic Esophagitis (EoE).  That diagnosis was confirmed with a recent visit to the Mayo Clinic in Rochester, MN. 

It feels good to be getting somewhere, but my GI doc doesn't think the EoE is responsible for all my symptoms.  I've been through a battery of screening tests, but everything else comes back negative so far. (Which is good, don't get me wrong, but I'd really like some answers!) Also, I think the meds may be making me feel worse (something I will be discussing with my doctor very soon!)

So that's where I am... I am beyond frustrated at how little training I feel I can do.  I am angry that food has become my enemy, and that I may never find my personal triggers for this disease.   I am sad that I now, at age 37, have a chronic disease that can only be managed, if I'm lucky, but never cured. 

But, most days, I refuse to feel sorry for myself.  I remind myself that it could always be worse.  That I am lucky to have options and access to top-notch medical care.  And I am determined to make the best of it, one day at a time. 

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